Comments on: Happy fifth Birthday to my Multiple Sclerosis

By: cress

cress — Tue, 17 Jan 2012 12:26:36 +0000

Its a first for me on here but I am happy to have this lovely illness when I read all your happy banter. I am so scared to say I have MS, work will discrimate, People tell me I am a liar (which they have done). Why because I am not in a wheel chair. The brain is quite deceiving but when you walk down the street and you feel like your feet are going 10 feet under, livig in a world that is spinning constantly and the flash of lights practically destroy you, and that good old loss of vision, they are probably right what do I know. I just feel, weird, tired, terrified of getting the loss of gravity. But after my second diagnosis in France, I decided enough was enough, no more living alone with the dreaded disease, so I found a doctor, married him and now feel insured for the future….Still will not take any medicine though. Keep positive..

By: bruce

bruce — Thu, 24 Nov 2011 11:08:40 +0000

Kelly D

- whatever gives you that impression? (Actually it doesn’t hurt, it’s just very scary and unpleasant)

By: Kelly D

Kelly D — Wed, 23 Nov 2011 10:41:32 +0000

“is shoved between your spinal discs and cerebrospinal fluid is withdrawn”

OOOOUUUUCHHHH!!!! That’s not fun!!!

By: sally woollett

sally woollett — Thu, 27 Oct 2011 10:08:55 +0000

Yo dude, fellow mser here, love the attitude.
all the best sal

By: Col. Karl Moates DFM

Col. Karl Moates DFM — Fri, 29 Jul 2011 08:03:30 +0000

I have been on a self-imposed sabbatical from the internet for years, yet I couldn’t resist this spirited debate. Let me clarify a few things:

I had stipulated “Coffee-Caffeine” as the primary precursors to MS lesions simply because at the time it was (and may still be) the primary precursor in numerous ways! Yet don’t forget about all the other caffeine/alkaloid sources used in addition either primarily or concurrently. Now you have the proverbial firestarters. Now add in a few other ingredients into the witches brew and voila, a disorder is born!

I am so glad to read intelligent commentary on this subject. You don’t know how close you are…
Hang in there!!!!!!!!

By: bruce

bruce — Sun, 31 Jan 2010 14:49:42 +0000

Good idea Philippa. And, for the sake of visitors to my blog:

I do not endorse any of the theories espoused by Mr Luoto about MS being caused or exacerbated by coffee, dragon breath or malign spells from fairies.

I don't say that they're wrong - I don't know. But the number of (pseudo-)scientific terms like "neurotransmitter" or " adenosine receptor A2A polymorphism" without a single, solitary link to any research makes me highly sceptical.

Of course, I'd be delighted to read any comments by Mr Luoto citing peer-reviewed scientific research that corroborates his theories.

Therefore, please talk to your own doctor before believing the advice of some random commentator on some random blog.